OMF - Scott Hurlbert, 42, multiple myeloma (a plasma cell cancer), Durham, CT, with Dr. Ken Anderson, program director, Jerome Lipper Multiple Myeloma Center and physician at LeBow Institute for Myeloma Therapeutics Institute, Dana-Farber 8-16-17

WEEI/NESN Jimmy Fund Radio-Telethon
Wednesday, August 16th

Scott was diagnosed with multiple myeloma in December 2012 after suffering through terrible bone and back pain for more than a year. Scott immediately sought a second opinion from Dana-Farber. Patients’ reviews and research indicated that Dr. Anderson is the “best in the business” and that Dana-Farber is a leader in multiple myeloma. At Dana-Farber, Scott was put on an aggressive combination of 3 different chemotherapy medications before he became a self-donor for a stem cell transplant. His body responded well to the transplant and he is now in remission with monitoring and maintenance therapy. Scott has been married for almost 20 years to his wife Tina and they have 2 girls, Cady, 14 and Sophia, 11. He said that at the time of his diagnosis, his girls were 6 and 9 years old, respectively, so this was an incredibly devastating and emotional diagnosis for such a young family. As he thinks of how overwhelming those first days were, he is now very grateful that he found Dana-Farber. He wants listeners to know that “you don’t need a miracle to do really well with multiple myeloma but we do need more therapies because it’s still a really challenging disease. Give Dr. Anderson and Dana-Farber the tools they need to continue making progress!” Scott works in IT for a bank in Connecticut and enjoys playing the guitar, watching movies, and spending quality time with his family.

 

Dr. Anderson graduated from Johns Hopkins Medical School, trained in internal medicine at Johns Hopkins Hospital, and completed hematology, medical oncology, and tumor immunology training at Dana-Farber Cancer Institute. He serves as chief of the Division of Hematologic Neoplasia, director of the Jerome Lipper Multiple Myeloma Center, and vice chair of the Joint Program in Transfusion Medicine at Dana-Farber. In his four decades of practice and research, including 32 years at Dana-Farber, Anderson has played a central role in transforming myeloma, a cancer of the bone marrow, from a near immediate death sentence to, in many cases, a chronic, manageable illness. From the 1970s through the ‘90s, not a single new myeloma drug made it into clinical practice. But during the last decade, Anderson has helped shepherd multiple new drugs from laboratory bench through regulatory approval and to the patient bedside. He is both encouraged and inspired by Scott’s commitment to personal health and advocacy for future advancement within the field of multiple myeloma.

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Transcript - Not for consumer use. Robot overlords only. Will not be accurate.

Doctor Ken Anderson is say here's Scott Herbert is series 42 years of age he's from Durham Connecticut what you tell us your stories got. Sure well I was diagnosed with multiple mildly in 2012. The third set. In depth. And it didn't you sick for quite awhile before then it really difficult. Statistic bureau is wrong with me so you were sick for awhile and you did not know what was going on now to go on to that. A year make it real well you know to go from doctor to doctor. You know dating advice to do things that China is trying. Very very difficult namely if he goes on and that finally you know so ill those hospital and you know discovered. In head and neck injury today meter recapture some. Surgery. Is challenging you know it is today. Had two young cute you know. States. And very very on. Anyone's. Up it became him fairs are and they had other justices. Yours well. But soon. Unbelievably grateful that. And it's treated. It Tarver and you and them through that. Cuter mission. And then well I agree. And it was punitive actions of all the people who helped me at that moment and all the people in the past ten things to support the research. These medicines don't want trees that it made by people who are supported. It's a direct line between people who know. He's like this you mentioned your family and this is your sisters she's thirteen months discount was diagnosed what did you find out. I was diagnosed. With a blood cancer as well but a different type I was diagnosed with T cell lymphoma or not content to cell phone. So he was very instrumental to me and like he said people in the past that can give you advice or he just inspired me. We had different courses of treatment but we both had stem cell transplants which I correlate with you know it is a blessing. Because that's what has kept me well and kept him laugh and that didn't happen twenty years ago so it's it is directly. I because of people like backed Anderson and people who give research and. That's why we're here in addition of bond between two of you obviously grew got a going through that and talking to each other being near for each other. Absolutely that's very we you know we were able to help each other help navigate through Senator McCain exits a scary thing for her. People. You know they're dealing with the disease but they're also dealing with. The doctor's appointments and pharmacies and insurance companies and parking it in the big city and all these things that. You know you need help with and then when you get to the center like. I can't harbor and there's these volunteers that help. People donate their time. A GE help you're gonna be able to get we had each other and to secure. So Scott you had you'd two girls there are six and nine. Right through you and your wife you get the news is that discussion with you would eagle ray cute kids how hot that kind of of that discussion go to children. Well you know I was basically diagnosed on the floor and emerges here with Baghdad and our my wife there and we. Yeah I didn't know what to do you honestly was just cold cold here. I don't want it to survive and that's about it and so we talked. With our parents counselors. And we do research about what you know what's the best way to do really bad thing earlier hit a difficult thing. Two we told them the truth you know. And we told anyway that if they could understand if it is. You sickness. In daddy's blood and we have to get medicine to get it out. You know doctor Anderson beyond what we see you every year the and and just talk about Jews. The difference between relief three years ago to today as far as research development. Clinical trials. And a short period of time I've been doing this show what a difference the money has that made his followers of research and development. It's just huge. And you've just heard. In real life terms what all these donations what all of you are doing. To help us at Dana Farber. That the news that they both received. Multiple myeloma lymphoma. Would have been a death sentence or certainly would have shortened their lives markedly. Not too many years ago but as you're highlighting. In the last few years. There's been a revolution in cancer treatment. So called targeted therapies. Targeted therapies that are used together to make great teams like the Red Sox and patriots. And we win in a similar fashion. And as you've just heard they both are in remission they do not have to answer any longer. I was so this is it. It's a direct result and I do want to stress that none of this would happen we clearly get funding from the government and foundations that we work with different companies. But New England is unbelievably. Lucky that you're on here and everyone supports that Jimmy Fund with amazing support. Without that these advances simply wouldn't happen. And we wouldn't be here today happy. Celebrating how well their. I just wanna say something about doctor Ken Anderson because the reason comes in here every year is he. Because he's one of the pioneers. In this business. That means you're old you've been around a long time it also means you have done a lot of things. In your lifetime serve and when you first started in this. Myeloma you you don't make it as you said it was a death sentence and because of use. And all the work that you've done the research and the care over the years and it's well documented. In over Dana Farber the reason people like these two are alive today so we thank you. You've done your very high right back Q I think it says it's the team's board and we all work together. It is true eyes start at forty years ago. Pieces that don't a couple of months now. It's a chronic. Pain patients are free of cancer hopefully. Normal lives so. You know we can win. World Series or super balls. The ultimate. Answers story hope that. It's got your in good hands I can tell you guys good guys good he's an all star I think I. Thank you all it's great to that your documentary. As great help to you okay Virginia.
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